What Is Alzheimer's Disease?
Alzheimer's Disease, named after German neurologist Dr.
Alois Alzheimer, is the most common form of dementia. Simply put, a
patient's healthy brain tissue dies, causing a steady decline in memory
and mental abilities. Eventually this loss of intellectual and social
skills becomes severe enough to interfere with a person's activities of
daily living.
Symptoms of AD may include:
Increasing and persistent forgetfulness. At its
onset, Alzheimer's disease is marked by periods of forgetfulness,
especially of recent events or simple directions. But what begins as mild
forgetfulness persists and increases. People with Alzheimer's may repeat
things and forget conversations or appointments. They routinely misplace
things, often putting them in illogical locations. They frequently forget
names, and, eventually, they may forget the names of family members and
everyday objects such as a comb or a watch.
Difficulty finding the right word. It may be a
challenge for those with Alzheimer's to find the right words to express
thoughts or even follow conversations. Eventually, reading and writing are
also affected.
Disorientation. People with Alzheimer's may lose
a sense of time and dates. They may find themselves lost in familiar
surroundings. Eventually, they may even wander from home.
Loss of judgment. Solving everyday problems, such
as knowing what to do if food on the stove is burning, becomes
increasingly impossible. Alzheimer's is characterized by greater
difficulty in doing things that require planning, decision making and
judgment.
Difficulty performing familiar tasks.
Once-routine tasks that require sequential steps, such as cooking, become
a struggle as the disease progresses. Eventually, people with Alzheimer's
may forget how to do the most basic things, like brushing their
teeth.
Personality changes. People with Alzheimer's may
exhibit mood swings. They may express distrust in others, show increased
stubbornness and withdraw socially. Early on, this may be a response to
the frustration they feel as they notice uncontrollable changes in their
memory. Depression often coexists with Alzheimer's disease. Restlessness
is also a common sign. As the disease progresses, people with Alzheimer's
may become anxious or aggressive and behave inappropriately.
Difficulties with abstract thinking. People with
Alzheimer's may initially have trouble balancing their checkbook, a
problem that progresses to trouble understanding and recognizing
numbers.
Alzheimer's generally progresses from mild
to moderate to severe. A person with mild dementia can usually live
independently with only minimal impairment in work or social activities.
With moderate dementia, he or she may seem capable, but independent living
becomes increasingly hazardous. Dress may appear careless, work and family
responsibilities may go neglected. The person may do things such as leave
the stove or iron turned on or become disoriented while away from home. As
the disease becomes more severe, the need for supervision becomes
constant. Short-term memory falters, and the ability to perform routine
tasks is lost. He or she may have difficulty recalling words. Later, the
person may string together unrelated words into meaningless
sentences.
To help diagnose Alzheimer's Disease
from other causes of memory loss - which are often treatable
- doctors may rely on:
Medical history. Doctors ask about a person's
general health and past medical problems. They will want to know about any
problems a person may have with daily activities. It's likely doctors will
also want to speak with a person's family or friends to get more
information.
Mental status tests. These tests are used to
evaluate memory, problem solving abilities, attention spans, counting
skills and language. They help pinpoint specific problems a person may
have with cognition. For instance, doctors might test recent and long-term
memory by asking: What day is it today? Or, when were you married?
Physicians may list familiar objects and then ask a person to repeat them
immediately, and again 5 minutes later.
Basic medical tests. Blood and urine tests may be
done. In some cases testing a small sample of spinal fluid also may
help.
Brain scans. Several types of brain scans are
available - including a computerized tomography (CT) scan, a magnetic
resonance imaging (MRI) scan and a positron emission tomography (PET)
scan. By looking at a picture of the brain, doctors may be able to
pinpoint any visible abnormalities. Using the methods above, doctors can
accurately diagnose 90 percent of Alzheimer's cases.
Caregiving. According to the National
Alzheimer's Association, 1 in 10 families have a relative with Alzheimer's
Disease. Of the 4 million people with Alzheimer's disease in the United
States, 70 percent live at home - often receiving part- or full-time care
from family members.
A loved one with Alzheimer's disease may
seem like a different person. As he or she slowly loses the ability to
express needs, concerns and memories. you may find yourself gauging the
needs of your loved one based on words and behaviors that often don't make
sense.
People with Alzheimer's disease often
experience a mixture of emotions - confusion, frustration, anger, fear,
uncertainty, grief and depression. You can help a person cope with the
disease by being there to listen, reassuring the person that life can
still be enjoyed, providing unconditional love and doing your best to help
the person retain dignity and self-respect.
The key to caregiving is focusing on things that the
person with Alzheimer's can still do and enjoy. In fact,
learning ways to reduce the impact of impaired abilities and behavior
problems can help avoid some of the most difficult aspects the
disease.
The key words are patience, compassion and
creativity.
The tools to care for each person will vary
depending upon symptomoly. Caregiving creativity is critical for caregiver
survival. See which ones work best for you and adapt them to your specific
situation.
Use memory aids. Memory aids may help a friend or
family member remain independent. Write out a list of the day's
activities, the phone numbers that can be used to call for help and
instructions on how to do simple tasks, like make a cup of tea or use the
telephone.
Provide structure. A home environment that
provides serenity and stability reduces behavior problems. New situations,
noise, large groups of people, being rushed or pressed to remember or
being asked to do a task that's too difficult can cause anxiety. As a
person with Alzheimer's becomes upset, the ability to think clearly
declines even more.
Monitor wandering. Wandering is a common problem.
In some cases, a pocket card with simple instructions, such as "Call
home" (with a phone number below) may help. Make sure your loved one
wears a bracelet with his or her name, phone number and a notation such as
"memory impaired." The Alzheimer's Association offers this
resource through its national Safe Return Program. Also try to determine
the cause of wandering. It may simply be a signal that the person with
Alzheimer's is looking for something, such as a bathroom, or is seeking a
meaningful activity or reassurance. Some experts believe taking your loved
one for a vigorous daily walk helps reduce wandering.
Establish a night-time ritual. Behavior is often
worse at night. Try to establish going-to-bed rituals that are calming and
away from the noise of television, meal cleanup and active family members.
Leave night lights on to prevent disorientation. Limiting caffeine during
the day, discouraging daytime napping and offering opportunities for
exercise during the day may help prevent nighttime restlessness.
Enhance communication. When talking with your
loved one, stand where you can be seen and touch his or her arm or
shoulder to focus attention. Speak slowly, in simply sentences and don't
rush the response. Present only one idea or instruction at a time. Use
gestures and cues, such as pointing to objects. Avoid asking questions or
offering difficult choices because trying to come up with answers may
prove frustrating.
Create a safe environment. Make your home
familiar and safe. Keep furniture in the same place to avoid clutter and
help prevent falls. Install locks on cabinets containing medicines,
alcohol, guns, toxic substances and dangerous utensils and tools. Remove
electrical appliances from your bathroom to prevent shocks, set your water
heater no higher than 120 F to prevent scalding, and install grab rails to
prevent falls.
Encourage exercise. Exercise carries many
benefits for someone with Alzheimer's disease. The fact that these
benefits often are the same for people without Alzheimer's disease does
not lessen their importance. In fact, it just makes exercise a more
important activity for caregivers and people with Alzheimer's to engage in
together. The main benefits of exercise include improved strength,
endurance and cardiovascular health. Exercise also can improve energy,
sleep, circulation, stamina and mood. For people with Alzheimer's disease,
exercise can also help retain motor skills, impart a sense of meaning or
purpose, create a calming effect and sustain strength, flexibility and
balance - lessening the risk of serious injury from a fall.
Very IMPORTANT
Caring for a person with Alzheimer's Disease can be an
all-absorbing experience. The physical and emotional demands of caregiving
can be exhausting. Feelings of anger and guilt, frustration and
discouragement, worry and grief and social isolation are common.
Take care of your physical and spiritual
health.
Ask friends or other family members for
help.
Join a support network with other caregivers.